| TOPIC |
ORGANIZATION |
DESCRIPTION |
HOW TO CONTACT |
| Quality of health care |
HealthGrades.Com |
See
ratings for your local hospitals, specialists, health plans and tips on how to choose them. |
http://www.healthgrades.com |
| Rare disorders |
Genetic Conditions/Rare Conditions Information |
The
University of Kansas Medical Center provides lists of resources for hundreds of genetic
conditions or birth defects. |
http://www.kumc.edu/gec/support/groups.html
|
| Rare Disorders |
National Organization for Rare Disorders, Inc. |
clearinghouse
for information on rare or orphan disorders; find referrals and support, information on
drug cost-sharing program, and information from NORD's Orphan Disease Update, Rare Disease
Database, and Organization Database. |
http://www.pcnet.com/~orphan |
| Rare Disorders |
NIH Office of Rare Diseases |
The
National Institutes of Health provides information on thousands of rare diseases, news on
current research and clinical trials, and contacts for support groups. |
http://cancernet.nci.nih.gov/ord |
| Raynaud's syndrome |
National Sjogren's Syndrome Association |
international
clearinghouse for information about Sjogren's syndrome, fibromyalgia, scleroderma, and
Raynaud's phenomenon. |
http://www.sjogrens.org |
| Retinopathy |
National Eye Institute |
information
on diabetic retinopathy |
http://www.nei.nih.gov/publications/retinopathy.htm
|
| Retinopathy |
National Institute of Diabetes and Digestive and Kidney
Diseases |
information
about hypoglycemia and diseases associated with diabetes, such as retinopathy and
neuropathy |
http://www.niddk.nih.gov |
| Rheumatic diseases |
American College of Rheumatology |
fact
sheets and a database of rheumatologists |
http://www.rheumatology.org |
| Rheumatic diseases |
ArthritisHelp Ah! |
description
of rheumatic diseases. |
http://rheumb.bham.ac.uk/primer.html |
| Safety |
National
Safety Council |
Site with links
pertaining to job safety and health, road and traffic safety, environmental health,
community safety. |
http://www.nsc.org |
| Safety |
National
Therapeutic Recreation Society |
National Recreation and
Park Assn provides info on playground safety covering topics of lead paint,
surfaces, equipment. |
http://www.nrpa.org/playsafe/playsafe.htm
|
| School health |
American School Health Association |
information
on protecting the health of school-aged children |
http://www.ashaweb.org |
| School health |
National School Safety Center |
safety
n US schools |
http://www.nssc1.org |
| Scleroderma |
National Sjogren's Syndrome Association |
international
clearinghouse for information about Sjogren's syndrome, fibromyalgia, scleroderma, and
Raynaud's phenomenon. |
http://www.sjogrens.org |
| Scleroderma |
United
Scleroderma Foundation, Inc. |
Fact
Sheets, support groups, research news, and links to organizations |
http://www.scleroderma.org |
| Senses |
Howard Hughes Medical Institute |
research
report on seeing, hearing, and smelling |
http://www.hhmi.org/senses |
| Sex Education |
Planned Parenthood Federation of America, Inc. |
resources
on sexual and reproductive health, family planning, STDs, or sexuality education. |
http://www.ppfa.org/ppfa |
| Sexually Transmitted Disease |
Alan Guttmacher Institute |
information
on contraception, sexual behavior, pregnancy and birth, abortion, and sexually transmitted
diseases |
http://www.agi-usa.org |
| Sexually Transmitted Disease |
American
Social Health Association |
Answers questions about
HIV and AIDS. English and Spanish. |
http://www.ashastd.org Or call AIDS Hotline:
800-342-2437 (English), 800-344-7432 (Spanish), 800-243-7889 for Hearing-Impaired. |
| Sexually Transmitted Disease |
Safer Sex Page |
information
about contraception and safe sex |
http://www.safersex.org |
| Sjogren's Syndrome |
National Sjogren's Syndrome Association |
international
clearinghouse for information about Sjogren's syndrome, fibromyalgia, scleroderma, and
Raynaud's phenomenon. |
http://www.sjogrens.org |
| Skin disease |
American Academy of Dermatology |
information
about skin cancer and other skin diseases, tips on sun exposure, referrals |
http://www.aad.org |
| Skin disease |
National Institute of Arthritis and Musculoskeletal and
Skin Diseases |
research
information on skin conditions and diseases, arthritis, musculoskeletal diseases. |
http://www.nih.gov/niams/healthinfo/ |
| Skin disease |
National Psoriasis Foundation |
referrals,
information on psoriasis. |
http://www.psoriasis.org |
| Skin disease |
National Sjogren's Syndrome Association |
international
clearinghouse for information about Sjogren's syndrome, fibromyalgia, scleroderma, and
Raynaud's phenomenon. |
http://www.sjogrens.org |
| Skin disease |
Scleroderma Federation, Inc. |
Fact
Sheets, support groups, research news, and links to other organizations with information
about scleroderma. |
http://www.scleroderma.org |
| Sleep Disorders |
Better
Sleep Council |
information on sleep and
health, how to create a restful sleeping environment, mattress care & selection |
http://www.bettersleep.org/guide1.htm |
| Smoking Addiction |
American Cancer Society |
general
information about lung cancer and tobacco |
http://www.cancer.org |
| Smoking Addiction |
American Heart Association |
information
about smoking and cardiovascular diseases, publications. |
http://www.americanheart.org/Heart_and_Stroke_A_Z_Guide/cigcvd.html
|
| Smoking Addiction |
American Lung Association |
information
on effects of smoking on lung health, pregnancy; discusses secondhand smoke, and nicotine
addiction. |
http://www.lungusa.org |
| Smoking Addiction |
CDC Tobacco Information and Prevention SourcePage |
The
Centers for Disease Control provides information on how to quit smoking and the research
and data to motivate people to do so. |
http://www.cdc.gov/nccdphp/osh/ |
| Smoking Addiction |
The Quitnet |
information,
support and tips to give up smoking. |
http://www.quitnet.org |
| Spondylitis |
Spondylitis Association of America |
education
and support for individuals with spondylitis. |
http://www.spondylitis.org |
| Sports |
American Running and Fitness Assn |
Running & FitNews,
information on training, nutrition, motivation, referrals to sports medicine
professionals |
http://www.arfa.org |
| Sports |
Lifetime Online: Sports and Fitness |
information
on exercise workouts, injury prevention, and self-defense |
http://www.lifetimetv.com/sports/index.html
|
| Sports |
National
Youth Sports Foundation |
information on safety in
youth sports for parents, coaches, young people |
http://www.nyssf.org |
| Sports |
Women's
Sports Foundation |
sports medicine,
physical fitness, disabled athletes, exercise and pregnancy. |
http://www.lifetimetv.com/WoSport |
| Stroke |
American Heart Association |
information
about smoking and cardiovascular diseases |
http://www.americanheart.org/Heart_and_Stroke_A_Z_Guide/cigcvd.html
|
| Stroke |
American Heart Assn Stroke Connection Warm Line |
prevention programs,
information, survivor and caregiver resources |
http://www.americanheart.org or call 800-553-6321 |
| Stroke |
National Stroke Association |
information
about prevention, treatment, rehabilitation, research, and support. |
http://www.stroke.org |
| Support Groups |
Nerd World Media |
extensive list of
support groups and programs for a wide assortment of health problems |
http://www.nerdworld.com/ns2155.html |
| Systemic Lupus Erythematosus |
Lupus Foundation of America |
chapters. |
http://internet-plaza.net/lupus |
| Systemic Lupus Erythematosus |
Lupus Home Page |
information
about systemic lupus erythematotsis, diagnosis and treatment, pregnancy, effects on
kidney, heart, and mental health. |
http://www.hamline.edu/index.html |
| Tampons, unbleached |
Terre Femme Tampons |
research information on
cholorine's health risks, product information and sales |
http://www.web.net/terrafemme/index.html
|
| Thyroid Disorders |
American Thyroid Association |
brochures,
information about support groups, and a reading list |
http://www.thyroid.org |
| Thyroid Disorders |
National Graves Disease Foundation |
answers
to Frequently Asked Questions about Graves Disease, reading lists, information about
support groups, links |
http://www.ngdf.org |
| Thyroid Disorders |
Synthroid |
on-line
library, information about effects of hormones, lists of specialists and support groups |
http://www.thyroid.org |
| Thyroid Disorders |
The Thyroid Federation International |
information
and publications |
http://www.thyroid-fed.org/home.html |
| Thyroid Disorders |
The Thyroid Foundation of America |
online
patient's guide to thyroid disease, glossary, articles, FAQ |
http://www.tsh.org |
| Thyroid Disorders |
The Thyroid Society |
answers
to Frequently Asked Questions about thyroid disease, information, links |
http://www.the-thyroid-society.org |
| Tuberous Sclerosis |
National Tuberous Sclerosis Association |
publications and
resources, family support, research news, chat room |
http://www.ntsa.org |
